Multiple sclerosis
Road Warrior
Joined: Oct 2012
Posts: 1,451
Likes: 1
From: South Florida
I had the MRI and low and behold, No sign of MS! They cannot say what caused my Optical Neuritis and other symptom. I was told I am the few 1 in 1000 that cannot be explained. They are still sending me to see a neurologist, but all in all I'm happy with the outcome. Not thrilled about the fact that my vision will never be the way it was in the left eye, but I have enough to be able to safely ride! Now where the hell is Spring! Thanks for all the warm wishes. Someone must have heard you? lol I'm now going to pay much more attention to the various charities that deal with MS.
Sometimes things just work out for the best!
Advanced
Joined: Aug 2011
Posts: 59
Likes: 0
From: Windham, Me
Diagnosed in '04, tried the ABC's of meds and have developed antibodies to all of them. Had a bout over Christmas where one leg and both feet went completely numb and lasted till 1st week of Feb, then slowly started regaining feeling.
Have optic neuritis in left eye (what led to the MRI and diagnosis) but my right has over compensated for the loss. Not blind by any means in the left..just everything is "whited out".
Anyway, I've found that extreme heat (over 80) and extreme cold (less than 20ish) affect my riding d/t the eye, so on those days I take the truck with the A/C. Too cold to ride in that temp anway
So far nothing debilitating has "stayed" for long...so far so good!
Hit me with any questions or concerns.
**Edit**
Just saw your post regarding the MRI. I don't want to be "that" guy, but go for a spinal tap. The MRI will only show lesions if the MS is advancing or active. If you have optic neuritis you run a what, 90%, chance of having MS, they just can't see it yet.
Find out brother, find out now and start treatment BEFORE it begins multiplying.
My 2 cents.
Greg
Have optic neuritis in left eye (what led to the MRI and diagnosis) but my right has over compensated for the loss. Not blind by any means in the left..just everything is "whited out".
Anyway, I've found that extreme heat (over 80) and extreme cold (less than 20ish) affect my riding d/t the eye, so on those days I take the truck with the A/C. Too cold to ride in that temp anway
So far nothing debilitating has "stayed" for long...so far so good!
Hit me with any questions or concerns.
**Edit**
Just saw your post regarding the MRI. I don't want to be "that" guy, but go for a spinal tap. The MRI will only show lesions if the MS is advancing or active. If you have optic neuritis you run a what, 90%, chance of having MS, they just can't see it yet.
Find out brother, find out now and start treatment BEFORE it begins multiplying.
My 2 cents.
Greg
Last edited by gbneal; Mar 20, 2013 at 11:19 AM. Reason: Add
Road Captain
Joined: Jan 2012
Posts: 621
Likes: 3
From: N CA
I had the MRI and low and behold, No sign of MS! They cannot say what caused my Optical Neuritis and other symptom. I was told I am the few 1 in 1000 that cannot be explained. They are still sending me to see a neurologist, but all in all I'm happy with the outcome. Not thrilled about the fact that my vision will never be the way it was in the left eye, but I have enough to be able to safely ride! Now where the hell is Spring! Thanks for all the warm wishes. Someone must have heard you? lol I'm now going to pay much more attention to the various charities that deal with MS.
Thread Starter
|
Supporter
Joined: Mar 2008
Posts: 4,419
Likes: 89
From: Vermont
Thanks everybody. They are still referring me to a Neurological Specialist. She specializes in MS and the cause of optical disorders. I'm staying on top of this one Brother! It is also a wake call for me to slow down, destress, get more sleep and start working out again not necessarily in that order. Looking back I believe my downhill health spiral started about the same time that my oldest son passed away! Greg and I worked out together and compared notes about 3 times a week. I really miss my time with him! Everyone told me but I was too stubborn and hard headed to listen! Thanks Again folks...If any of you decide to make a road trip to Vermont, please give me a heads up! I'd love to feed ya, and meet you in person! Rick
Last edited by Rickr01; Mar 20, 2013 at 12:56 PM.
I had the MRI and low and behold, No sign of MS! They cannot say what caused my Optical Neuritis and other symptom. I was told I am the few 1 in 1000 that cannot be explained. They are still sending me to see a neurologist, but all in all I'm happy with the outcome. Not thrilled about the fact that my vision will never be the way it was in the left eye, but I have enough to be able to safely ride! Now where the hell is Spring! Thanks for all the warm wishes. Someone must have heard you? lol I'm now going to pay much more attention to the various charities that deal with MS.
Rickr01
I had the same problem in 2005. Lost sight in left eye. MRI showed no MS. I was 50 at the time. Now my optometrist says that I have 20/300 in left eye, better than 400 and not as good as 200 but they don't use 300..see shapes, light and it seems to improve every year....I had been without a scoot for about 29 years due to kids and family and didn't buy my UC until 2010. Don't have a problem with driving a scoot. Parking a car or truck is sometimes a problem due to the depth perception being gone but not that big a problem on a bike. I just drive a lot more careful now a days.....and it means I won't have to spend money on a 3D TV .......
BE SAFE
Elite HDF Member
Joined: Jul 2007
Posts: 3,891
Likes: 54
From: Mansfield, MA
Thread
Thread Starter
Forum
Replies
Last Post
Knee
General Harley Davidson Chat
39
Feb 1, 2007 12:34 AM