Multiple sclerosis
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Joined: Mar 2008
Posts: 4,419
Likes: 90
From: Vermont
Nobody? Or is it something nobody talks about? I'm curious because I go for the MRI next week and all signs lead them to believe I have MS. 98% sure! Unusual I'm told for a guy in his 50's but it happens. They think I've been living with it for many years. I don't plan on hanging up my chaps any time soon, but I'm just sort of reaching out to see what to expect from those thay may also have MS. The main side effect at this point was loss of vision in my left eye. It is coming back but I'm told it will never be as good?
Last edited by Rickr01; Mar 14, 2013 at 05:52 PM.
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Joined: Mar 2008
Posts: 4,419
Likes: 90
From: Vermont
That I do know! I've still got two young kids to finish raising, 7 and 12 and quite a few trips yet to take. ***** been messing with me for years I guess. I'm just stubborn and figured it was just age creeping up...I guess I was wrong.
Road Captain
Joined: Apr 2010
Posts: 515
Likes: 3
From: Tipp City Ohio
My wife has MS and is on Gelinia.3rd round of clinical trials.She goes to the gym 4 times a week and weight trains to keep her strength up.
so far it's working well.
She's had it 8 yrs but we've been lucky.No major attacks but we are careful about riding in the heat.
Spring and fall are the worst time for exaserbations.We just watch the weather and let her body dictate our limits.
We love to fish,ride,golf and just be outdoors.
Good luck and hope they can find a cure.
so far it's working well.
She's had it 8 yrs but we've been lucky.No major attacks but we are careful about riding in the heat.
Spring and fall are the worst time for exaserbations.We just watch the weather and let her body dictate our limits.
We love to fish,ride,golf and just be outdoors.
Good luck and hope they can find a cure.
Seasoned HDF Member
Joined: Mar 2007
Posts: 66,948
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From: TOAK western branch
Freind started with a crutch every now and then as her kids finished school and now its 2 full arm braced crutches and if its a bad day she might not leave the house for a few days. Not trying to scare you but it plane sux and sorry to hear it. I realy dont have much to say from my end but there is a lot of support group/clubs out there to lean on (no pun intended).
Elite HDF Member
Joined: Jan 2009
Posts: 4,516
Likes: 103
From: Massachusetts (NE)
My friend got it in his early 50's, started to beat him up, he got 100% disabliity, then 2 years later he's not bad off at all BUT can work full time cause of the disability rules ...
seems to come on then not so bad, as Richard Pryor was in a wheel chair for a while then made some movies later ...
wishing you the Very Best Luck
seems to come on then not so bad, as Richard Pryor was in a wheel chair for a while then made some movies later ...
wishing you the Very Best Luck
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Joined: Jun 2010
Posts: 9,689
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From: Syracuse,NY
On the other hand, I also work with a guy who's the mechanic here and the meds seem to keep him functioning. He drops tools once in a while and slurs, but it appears he won't be unable to work any time soon.
I guess the MRI will show how bad the lesions have progressed. Hopefully, medication can keep you living a normal active life for years to come.
Good luck.
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I work in Neurology and we have quite a few patients with MS all at various stages with various problems. I recommend you see an Neurologist that specializes in MS to get you on the right track with meds and to ask all your questions. Are you having vision problems?
Seasoned HDF Member
Joined: Jan 2011
Posts: 28,842
Likes: 16,582
From: Wisconsin, USA
I am an optometrist. Some people's vision returns to normal, some people go blind. Cover one eye every day and see a neurologist ASAP if eye suddenly blurs, or your eye has pain behind the eye, with movement. Have a yearly visual field, and dilated eye exam.
Some eye doctors charge a lot extra for these tests, I don't charge for screening VF, only for more complicated ones.
PM me if you have any questions.
Some eye doctors charge a lot extra for these tests, I don't charge for screening VF, only for more complicated ones.
PM me if you have any questions.